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See Differently - With the Royal Society for the Blind - Homepage Link - Logo White
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See Differently - With the Royal Society for the Blind - Homepage Link - Mobile Logo Black

Retinitis Pigmentosa

Understanding Retinitis Pigmentosa

Retinitis Pigmentosa (RP) is a group of genetic disorders that cause progressive damage to the retina, particularly the photoreceptor cells responsible for light detection. The condition typically starts with the loss of night vision and peripheral (side) vision, gradually affecting central vision as the disease progresses. It is often diagnosed in childhood or adolescence and can lead to significant vision impairment or blindness over time.  

Retinitis Pigmentosa - visual representation of what someone with the condition may see

What You Might Notice

The symptoms of RP develop gradually, and they may include:  

  • Difficulty seeing in low light or at night (night blindness)
  • A gradual loss of peripheral vision, sometimes called “tunnel vision”
  • Blurry vision or trouble seeing small details
  • Sensitivity to bright light or glare
  • Reduced ability to distinguish colors or see objects clearly in dim light

How RP Can Affect Everyday Life

Because vision changes with RP usually happen slowly, they can be easily missed at first.

Over time, activities that rely on clear or wide vision — like moving around safely in low light, reading, or recognising faces — may become more challenging.

As the condition progresses, daily life may involve adjusting to new ways of doing things, such as using lighting changes, assistive devices, or mobility support.

What Can Help

If you’re living with RP or noticing changes in your vision, staying in regular contact with an eye care professional is important.

Eyecare Professionals can help monitor your vision and guide you toward supports that suit your lifestyle. Many people benefit from low vision tools like magnifiers, screen readers, or electronic aids.

Orientation and mobility training, home modifications, and access to community resources can also make a big difference in staying active and independent.

The Impact

Retinitis Pigmentosa impacts quality of life by progressively reducing vision, particularly in low-light conditions and in peripheral vision. The loss of central vision can affect activities such as reading, driving, and recognizing faces.   

As RP progresses, individuals may need to rely more on assistive technology, mobility aids, and environmental modifications to enhance their ability to navigate the world. Early detection and consistent management are vital for adapting to vision changes and maintaining as much independence as possible.